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AGSD Patient/Family/Medical Conference

  • June 28, 2024
  • 3:00 PM
  • June 30, 2024
  • 12:00 PM
  • Minneapolis, MN

Registration

  • Attendees directly affected by or treating GSD (i.e. family, friends, physicians, clinicians, researchers).

    All other industry partners, please register under “industry registration.”

    Please register each additional family member (ages 4 and up) residing at the same address as a "guest" at a discounted rate (max 5). Guest registration will be found at the bottom of the form.

    Note: Infants and toddlers ages 3 and under are free.
  • Medical industry professional not actively involved in GSD treatment or research (i.e. Pharmaceutical, Medical Devices, Biotech, etc)

Register

AGSD Patient/Family/Medical Conference

Hilton Minneapolis/Bloomington

3900 American Blvd West Bloomington,

Minnesota 55437 USA


The Association for Glycogen Storage Disease is holding their annual family/medical conference for those affected with GSD, their families, and medical professionals involved in treatment or research of any type of GSD.


The focus of this conference is meeting other people and families affected by GSD, gaining a better understanding of the GSDs and their implications, and learning about the latest research findings and upcoming studies.


While AGSD membership is encouraged, the conference is open to the public. 


Please use the menu on the left to begin your registration. 

Any person who is not a medical professional.

You may register up to 5 additional family member (ages 4 and up) residing at the same address as a "guest" at a discounted rate. Guest registration will be found at the bottom of the form. Note: Infants and toddlers ages 3 and under are free.

Medical industry professional not actively involved in GSD treatment or research (i.e. Pharmaceutical, Medical Devices, Biotech, etc)

A registration code will be provided for speakers/presenters. 

Please Note Media Consent:  all registrants and guests grant permission to AGSD to use photographs and/or video taken on June 28-30, 2024 at the AGSD Conference in publications, news releases, online, and in other communications related to the mission of AGSD.

About the association

The Association for Glycogen Storage Disease - AGSD - was established in 1979 in order to create an organization which would be a focus for parents of and individuals with glycogen storage disease (GSD) to communicate, share their successes and concerns, share useful findings, provide support, create an awareness of this condition for the public, and to stimulate research in the various forms of glycogen storage diseases. 

This website provides basic information about the glycogen storage diseases. The information is intended to be of use to people affected by one of the glycogen storage diseases, their families, and other interested parties.

Some forms of GSD cause little in the way of illness, while others are life threatening. Included in this site is a description of the general symptoms, associated problems, current treatment, and long-term outcome for the most commonly diagnosed glycogen storage diseases. It does not do justice to the difficulty patients and their families' experience, and their deep desire for improved forms of treatment or ultimately total correction. 

Contact

Association for Glycogen Storage Disease

1542 Flammang Dr. PMB 1004
Waterloo Iowa 50702


info@agsdus.org

                    



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