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Association for 
Glycogen Storage Disease

Spreading our rays to shine for a brighter future”

Welcome to the website of the Association for Glycogen Storage Disease!

The Association for Glycogen Storage Disease - AGSD - was established in 1979 in order to create an organization which would be a focus for parents of and individuals with glycogen storage disease (GSD) to communicate, share their successes and concerns, share useful findings, provide support, create an awareness of this condition for the public, and to stimulate research in the various forms of glycogen storage diseases.

This website provides basic information about the glycogen storage diseases. The information is intended to be of use to people affected by one of the glycogen storage diseases, their families, and other interested parties.
 

All About the AGSD Glycogen and GSDs Sign-Up to Join the AGSD Donate to the AGSD
All About the AGSD Glycogen and GSDs Sign-Up to Join the AGSD Donate to the AGSD
Information about the 2013 AGSD Conference
held on September 20th and 21st, in Raleigh-Durham, North Carolina
link to 2014 Conference page

will be held on
Friday and Saturday,
September 19 & 20,
in
Dearborn, Michigan

CONFERENCE DETAILS

link to hotel website
online registration now available

Some forms of GSD cause little in the way of illness, while others are life threatening. Included in this site is a description of the general symptoms, associated problems, current treatment, and long-term outcome for the most commonly diagnosed glycogen storage diseases. It does not do justice to the difficulty patients and their families’ experience, and their deep desire for improved forms of treatment or ultimately total correction.

Diagnosis of a rare genetic disease can be a very lonely experience for the patients and their families, and in some cases, for their doctors also. These pages are intended to help reduce that sense of isolation by providing not just information, but also a point of contact.

URL: www.agsdus.org     Website last updated on September 10, 2014.
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